Creating a caregiver-focused coping resource

When I was diagnosed with Crohn’s disease at 12 years old, I was inundated with thoughts and feelings about my new diagnosis – what did it mean, why did I need to take medicine, what did a chronic illness mean for my future, how was I going to learn to swallow pills? I was – understandably and developmentally-appropriately – focused on my own coping with a new illness as a young person. I remember feeling frustrated and impatient with my very supportive parents when they prompted me to take my new medication; I cried and was obstinate often in those early weeks and months, with my parents’ support unwavering and steadfast. My mom was my advocate and champion, she always made sure my voice was heard during medical visits. My dad helped me to feel less alone, including a sincere offer to also have an NG (nasogastric) tube placed when we considered enteral therapy.