Ehlers-Danlos Syndrome
OK. This is not specifically a Crohn’s thing but an older sib of my 2 Crohn’s kids has just been diagnosed with this. I have heard it bandied about around here. I know there are parents who will tell me much.
Please send anecdotes and info. She is 16, was basically crippled from a tiny meniscus tear, has had back problems requiring physio (although diagnosed as caused probably by poor posture), been seen by GI for constipation issues, had sleep study for chronic exhaustion, and chiro had…
