The power of community and accessible resources for families navigating IBD and nutrition therapy – Leah’s Story

My name is Leah, and I am a parent on the ImproveCareNow Parent/Family Advisory Council (PFAC) with two children diagnosed with Crohn’s disease. In 2016, our world turned upside down when both our children were diagnosed with IBD. We were nervous, scared, and overwhelmed facing not one but two Crohn’s diagnoses. Our wonderful GI, Dr. Suskind, discussed various treatment options, one of which included a dietary therapy approach that he had been newly researching called the Specific Carbohydrate Diet (SCD). I went home from the hospital armed with food lists and determination and got started right away on a new way of cooking.